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Organization Number: 43-1492959 Organization Name: Vasculitis Foundation Address: P.O. BOX 28660 Address: 7 NW 72nd St. City: Kansas City State / Province: MO Zip / Post Code: 64188 Country: United States Phone: 1-800-277-9474 Ext: Fax: 1-816-436-8211 Organization Email: wga@wgassociation.org Website Address: http://www.wgassociation.org Detailed Description: We are a non-profit organization dedicated to providing emotional and informational support to patients with Wegener's granulomatosis (WG), to assisting them and their families in understanding the disease and recovery process. Wegener’s granulomatosis is a rare, vasculitis disease, which strikes people of all ages. There is no known cause or cure for Wegener’s. Early diagnosis is critical to patients. Without effective treatment, the disease is fatal. The Wegener’s Granulomatosis Association (WGA) is the largest patient support group and the only international organization for people with Wegener’s and their loved ones. Through our newsletter, web site, information packets, medical consultants, symposiums, area contacts and chapters, we work to raise awareness of Wegener’s, educate our patients about the disease and support research into the cause, cure and treatment of the disease. Wegener's Granulomatosis (WG) is a rare form of vasculitis; that is, a disease characterized by inflammation of the walls of the blood vessels. This inflammation can result in damage to vital organs of the body by restricting blood flow to those organs. WG normally begins as a localized granulomatous inflammation of the nasal mucosa (lining) and lung tissue, and usually progresses into generalized necrotizing (gradual degeneration) granulomatous (tumor-like) inflammation of the blood vessels. WG is an autoimmune disease, meaning the body's immune system attacks its own body tissues. About 90% of patients start with cold, sinus, or allergy-like symptoms that fail to respond to the usual therapeutic measures. Others may begin with arthritic symptoms, skin rashes, or eye, ear, or throat infections. The advent of WG may start slowly and continue over a period of time, or it may have a rapid, severe onset. Although vasculitic diseases can result in damage to any organ system, WG primarily affects the respiratory tract (sinus, nose, trachea, and lungs) and the kidneys, and may involve the joints, eyes, ears, and skin. Patients who do not have renal (kidney) involvement are described as having Limited Wegener's. This disorder occurs equally in males and females and can occur at any age, but usually in middle age. The cause of WG is not known. | |
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